New Hope For A Cure For Motor Neurone Disease
Robyn Paine made a pact with her best friend Deb Bailey just before the journalist and editor died of a crippling brain and spinal disease.
She established The Deb Bailey Foundation to raise funds to help find a cure for motor neurone disease. Twelve years later, the $10 million Deb Bailey MND Research Centre will open tonight at Macquarie University.
Ms Paine recalls the day Ms Bailey, who had worked for Australian Woman’s Weekly. She and Family Circle, was hit by the effects of MND. “The last time I saw Deb well, we’d just had lunch and she was fine, then I heard she’d collapsed at work,” Ms Paine said.
“The next time I saw her she was in hospital, she had a tube put down her and her speech was almost gone. Then at her house she had a walking frame. Everything seemed to go so fast.” Ms Bailey died in 2001 at age 48 – just five months after being diagnosed with MND. The average life expectancy is about one to two years. “I saw her only a couple of hours before she passed. I said: ‘We will do something’ and she was excited and reaching out trying to hug me.”
A team of five leading medical experts have already begun research at The Deb Bailey MND Research Centre. Professor Gilles Guillemin said MND affects the electronic connection between the brain and the rest of the body.
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The Deb Bailey Foundation for Motor Neurone Disease is a not-for-profit organistation and depends on the generosity of individuals, corporations and community groups to help us achieve our mission of finding a cure for MND. Whether your interested in fundraising, sponsorship, joining the research team, or if you’re just keen to get involved, there are many ways you can help.
You can support the research and work we are doing by donating to The Deb Bailey Foundation for Motor Neurone Inc. Whether it’s a one off donation, pledge or sponsorship you can be assured that your money is going towards research aimed at finding a cure for MND.